Parent Project Muscular Dystrophy (PPMD), the leading nonprofit in the United States focused entirely on Duchenne muscular dystrophy (Duchenne), launched the Duchenne Central mobile app, in collaboration with Siren Interactive, a digital relationship marketing agency focused on rare disorder therapies. The app, which is available as a free download for Apple and Android devices, is an easy-to-use and on-the-go tool to locate clinical trials and clinics and view and share the latest Duchenne news. Duchenne is a fatal genetic disorder that slowly robs young men of their muscle strength.
“Currently, there are no FDA-approved treatments for Duchenne; however, there are several potential therapies in development and currently in clinical trials,” notes Pat Furlong, founding president and CEO of PPMD. “It’s essential that patients and their families have ongoing access to information on the latest clinical trials. We’re proud to bring this new resource to the Duchenne community.”
The app was developed with the goal of filling a need for the Duchenne community and developed with the experts at PPMD.
Especially for rare disorders, enrolling enough patients in a clinical trial can be challenging. “With the explosive growth of mobile devices, people are using their smartphones to access information 24/7 whenever and wherever they need it,” says Wendy White, founder and president of Siren Interactive. “This app will make it easier for Duchenne families to find the right resources. We’re also very pleased to be able to support the amazing work of PPMD.”
About Parent Project Muscular Dystrophy
Duchenne is a fatal genetic disorder that slowly robs young men of their muscle strength. Parent Project Muscular Dystrophy (PPMD) is the largest, most comprehensive nonprofit organization in the United States focused on finding a cure for Duchenne muscular dystrophy—our mission is to end Duchenne.
We invest deeply in treatments for this generation of young men affected by Duchenne and in research that will benefit future generations. We advocate in Washington, DC, and have secured hundreds of millions of dollars in funding. We demand optimal care, and we strengthen, unite, and educate the global Duchenne community.
Everything we do—and everything we have done since our founding in 1994—helps boys with Duchenne live longer, stronger lives. We will not rest until every young man has a treatment to end Duchenne. Go to www.ParentProjectMD.org for more information or to learn how you can support our efforts and help families affected by Duchenne.
About Siren Interactive
Siren Interactive is a digital relationship marketing agency focused exclusively on addressing the challenges and unmet needs of patients, caregivers, and physicians dealing with chronic rare disorders. Because of this expertise, the agency can drive new patient starts and lifelong adherence to therapies for its biopharmaceutical clients. A recipient of the 2011 Manny Heart Award, Siren Interactive is the nation’s first and only marketing agency with dual regulatory compliance certification for Patient Relationship Marketing and Internet Promotion/Social Media. The agency was founded in 1999 as a woman-owned business and has been on the Inc. 5000 list of the fastest growing private companies in the US since 2010. Visit http://www.sireninteractive.com.